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Published 10:57 17 Apr 2019 BST
“He’s been in the hospital his whole life. “I’ve been able to hold him twice, but you have to be dressed in a gown and gloved-up. It’s not skin-to-skin. It’s not the same.”Maldonado said that she and her partner could be waiting up to three weeks before doctors know best how to treat their son. Specialists believe Ja'bari may be suffering from a rare skin condition called Epidermolysis bullosa. The illness affects just 20 newborns out of one million in the US. it is incurable but can be treated and managed with pain medication. The infant is currently being given pain medication and ointments, as well as regular bandage dressing changes. His family have since set up a GoFundMe page to pay for medical expenses and other bills. They have already raised over half of their $50,000 goal. Feature image via GoFundMe.
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