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An influencer has announced her own death aged 39, three years after being diagnosed with ALS.
Sara Bennett announced her own death on Tuesday 13 January through a post on her Instagram page confirming the news.
The caption on the post was written by Bennett herself.
It read: “I am not in pain, or tired. I can laugh, talk, and I can move. Reflecting in my last few months of my life, I am glad I didn’t go suddenly even WITH the suffering. I finished my list.
“Even if you don’t believe in any thing, I am feeding the earth, and my tree. I loved this life, and am grateful for the time.”
Bennett had used her Instagram platform to document her journey of living with the neurodegenerative disease known as Amyotrophic Lateral Sclerosis after originally setting it up to promote her business the Ananda Edit.
“My world turned upside down. So many things to do from a personal standpoint. So many things to address from a disease standpoint. So many things to get in order,” she explained in May 2024.
“When I thought about my business, I felt like deleting the account and stepping away. But… that would just be one more thing this disease was taking from me.”
Bennett used her account to reflect on her life, death and marriage to her husband, Rusty, and also how she continued to parent their children Lincoln, 9, and William, 7.
Before she died Bennett posted about doing a “dry run” of what she called her “End Of Life Ceremony” during which she got to hear what loved ones would say after she died.
She wrote: “The idea of a traditional funeral just doesn’t feel ‘like me’.
“I know it is sad, I am not trying to make it easier. I just want to reframe it, and I won’t let fear or discomfort keep me from the chance to do this.”
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15th January 2026
12:43pm GMT