It’s every parent’s worst nightmare for their child to fall ill and being told that money is the only obstacle to their recovery makes the blow even harder.
That is the harrowing situation facing Dublin couple Alan and Michelle Finglas, whose two-year-old son Dylan has been diagnosed with a rare and devastating genetic disorder.
Overjoyed with their son’s arrival, it was only when he turned 18 months that the pair began to become concerned over delays in his development. Following a series of tests, it was found that Dylan suffers from Multiple Sulfatase Deficiency (MSD) and may not see his tenth birthday.
There is a ray of hope for Dylan in that researchers in Italy have successfully identified a cure for the disease in lab tests but much more funding is needed to develop the treatment for humans.
The couple have now released a video appealing for donations towards MSD research in the hope that the cure will be ready in time to save their little boy’s life.
You can find out more at www.savingdylan.com. The video, entitled ‘This video will save a little boy’s life’, is on YouTube.
