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Published 09:42 29 Oct 2014 GMT
Updated 09:44 29 Oct 2014 GMT
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Doctors recently told his family that the disease was no longer treatable and that he only had days, maybe weeks, to live.
That is why his parents decided to bring Halloween, Ethan’s birthday and Christmas forward. They celebrated all three occasions last week.
Yesterday, it was confirmed on the ‘Fundraiser for Ethan Van Leuven’ Facebook page that the little boy had passed away. The post read: “A heartbreaking update on 4-year-old Ethan Van Leuven of West Jordan, who captured the hearts of so many around the world.
“Ethan passed away this morning at 10:20, surrounded by family and friends. I spoke to his father, Merrill Van Leuven by phone and he was so grateful for the outpouring of support by not only our Utah community but around the world.
“To the Van Leuven family, we appreciate you letting us into your lives at this special time, to tell sweet Ethan's story and show the wonderful community we live in. You are in our prayers.”
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