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10th Dec 2021

Six year old girl passes away of rare brain tumour

Ellen Fitzpatrick

A tragedy.

A six year old girl has tragically passed away after a battle with cancer when her parents noticed something different about her face as she sat for a family meal.

Acacia Surridge Hill was diagnosed with a rare brain tumour in September of 2020 after her mum and dad noticed there was something wrong as she ate her dinner.

Acacia, unfortunately, passed away on Sunday, November 28, leaving mum Carly, stepdad Ben and brother Landon heartbroken.

With her mum expecting another baby in a matter of a few weeks, it was snowing the day Acacia passed with her mum saying they “will always think of her when it snows.”

The family first noticed something was wrong when they were all eating dinner together and noticed something off about her face.

The six year old was then diagnosed with a rare brain tumour when Carly and Ben spotted that one of her eyes was almost completely shut over and her mouth was slanted on one side.

According to Stoke-on-TrentLive, they visited the GP and she was diagnosed with Bell’s Palsy but the family pushed for her to get a scan and this was when the tumour was discovered.

Acacia underwent more scans and an operation, she was diagnosed with a diffuse midline glioma H3K27M which is an aggressive, incurable form of cancer.

Carly told the publication: “She was diagnosed in September last year and we were told she could have 12 months to live, but that it was more likely to be six to nine months.

“Three weeks ago they told us she had weeks to live, so we knew it was coming, but we didn’t know when. She stayed at home with us and we looked after her. We didn’t want to be without family and friends close by.

“She was always a star, shining bright, and she’s still doing that now. She was adorable and so friendly. She was a wonderful girl and I am very, very proud of her. I couldn’t be more proud.”

Acacia passed away at her home in Crewe, with money raised for her treatment now going towards a funeral fit for a princess with a horse and carriage bringing her to the service.